News

2017

Important Update:

Prothena Announces Initiation of Phase 2 PASADENA Study of PRX002/RG7935 in Patients with Early Parkinson's Disease

We lucked out. There is a clinical trial going on right here in New Haven Ct. which shows great potential as a step to a cure or a cure itself

This Phase 2 study will evaluate the impact of targeting alpha-synuclein on the slowing of progression of Parkinson's disease in patients.

To participate in this study, the qualifications are:

  • Diagnosed with PD within the past 2 years
  • Not on levadopa/carbadopa
  • Don't anticipate needing it soon

 

Please, if you have been recently diagnosed and are not on levedopa/carbadopa,  contact Dr. David Russell, at drussell@invicro.com.

 

 

2016

July 16, 2016: Parkinson's MADPA Symposium

June 4, 2016: Parkinson's Disease Workshop - A Success! Watch Dr. Machado's summary here.

May 31, 2016: Thimble Island Cruise Announced. Click here for details

May 31, 2016: Check out this video on “Exercising your body and mind: Tai Chi for enhancing motor and cognitive function in Parkinson's disease” by the Davis Phinney Foundation on Vimeo.  The video is available at https://vimeo.com/153010154

April 29, 2016: Larry Orkins, Jr. retires from CAP. Read Tribute here

March 21, 2016: Representative Elizabeth Esty presents to CAP & partner groups at Southbury library. Press Release here.

February 5, 2016: CAP's Allyson Kinney featured in The Sound (Newspaper, Feb 4, 2016 issue) and Zip06 website! Way to go, Allyson! #Helping

2015

December 15, 2015: Clinical Trial Transportation Program Announcement. Click here for details.

November 12, 2015: CAP Branford Chapter Announced! Click here to learn more.

November 7, 2015: Members of the Connecticut Advocates for Parkinson’s were out in force in old Saybrook last weekend to support the annual “Race for the Cure” fundraiser held by one of their own, Sonny Whelen.

Sonny, joined by his fiancée Christina, host the annual concert at the Katharine Hepburn Cultural Center, with proceeds donated to the Michael J Fox Foundation.

KHCC Fundraiser

Shown in this photo are Joseph Kelly, Allyson Kinney, Sam Fox, and Steve DeWitte.

Sam Fox, you may remember, climbed the highest peaks in each of the States last year under the banner of “Tour de Fox”, raising over $2,000,000 dedicated to PD research in honor of his mother.  Sam shared how impactful this experience was for him, and that a film is in the making that chronicles the trip.

He has fond memories of his time in Connecticut, and promised a special screening of the film upon its completion.

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November, 2015

Steve DeWitte, attended meetings in Grand Rapids, Michigan earlier this month held at the VanAndel Institute and worked with a group of People with Parkinson’s Ambassadors to support the launch of a unique Health Care Program entitled, Parkinsonnrt ( http://www.parkinsonnet.info).  The program is designed to allow PWP access to any number of Care Providers that specialized in the treating of Parkinson’s.  Professionals are trained and certified by an Oversight Board, and provide treatment in the attempt to relieve many of the movement and non movement symptoms, all covered through your Health Care Insurer.   Program is said to be cost effective, and assuredly improves care for those suffering from Parkinson’s.

Parkinsonnet

This program has it’s roots in the Netherlands, and is championed here (back to camera) by Dr. Bastian Bloem and Dr. Marten Munneke from the Radboud University Medical Center.

October 3, 2015: A New Attack on Parkinson's Disease, article here: Click Here

July 20th, 2015: MADPA SYMPOSIUM

June 18th, 2015: HOSPITAL FOR SPECIAL CARE TEAM-UP